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3.6 Overall Rating

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Most voted positive review

15 People found this comment helpful

I have polymyositis. I started ivig about 5 years ago. In the begining I had treatments biweekly and currently I go every 3 weeks for 2 days. When I first started treatment I was barely able to walk, now I am much stronger. In the begining it have me huge headaches however now that the hospital changed from the powder form too liquid form the headaches are rare. Last year I thought ivig wasn'...

Most voted negative review

2 People found this comment helpful

received 800ml for 2 days every other week did this treatment for 1 year no noticable benefit developed high blood pressure from it

Shared reviews and ratings

BARose | 65-74 | Female | On medication for 1 to less than 2 years | Patient
2/6/2024
Condition: Primary Immune Deficiency Disorder
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

I drink as much water as possible prior day and then after ivig and no headaches. I feel great and my immune system is back up to normal after 1 x month for 1 1/2 years. I’m moving to home sub q. 1 time per week. I’m told this is better because it will keep my energy level at an even level vs the ski slop curve I had when doing monthly ivig. I am wiped out by the time the next monthly I fusion ivig. Hopeful for subq

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GBS Australia patient | 45-54 | Male | On medication for less than 1 month | Patient
10/10/2019
Condition: Guillain-Barre Syndrome
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

2 bottles per day for 5 consecutive days for treatment of my GBS. VERY EFFECTIVE. No complications. Made my body get very cold during treatment but otherwise most effective.

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bluenun77 | 55-64 | Female | On medication for 2 to less than 5 years | Patient
8/8/2015
Condition: Hypogammaglobulinemia associated with Recurrent Bacterial Infections
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

Developed hypogammaglobulimia from chemo for a blood disorder - Evans Syndrome. I started with IV infusions - but after a month explored the possibility of self infusions. Started sub-q every other week for 2 years - found better to take lower dose weekly. It has worked very well with little side effects.

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Anonymous | 55-64 | Female | Patient
5/25/2015
Condition: Other
Overall rating 1.0
Effectiveness
Ease of Use
Satisfaction

IVIG tried twice for polymyositis, I got meningits both times.

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Anonymous | 55-64 | Female | On medication for 2 to less than 5 years | Patient
2/25/2015
Condition: Chronic Inflammatory Demyelinating Polyradiculoneuropathy
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction

I have CIDP. I had gotten to the point that I could not use my arms and my legs were starting to give out as well. I finally found a Dr. that said I had CIDP and started me on IVIG. I go every 2 weeks to an infusion center. It is like night and day. I have all my strength back and know for sure that this is the answer. I don't even care that I have to go get it done. It takes about 5 hours and I do have a headache afterwards, but what's a headache compared to losing the use of your arms.

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Anonymous | 55-64 | Male | On medication for 1 to 6 months | Patient
1/12/2015
Condition: Chronic Inflammatory Demyelinating Polyradiculoneuropathy
Overall rating 3.0
Effectiveness
Ease of Use
Satisfaction

I have. cIdp and have taken the IV- IG infusions for 4 months- it has stopped the increasing numbness but I am still weak and have little energy, am starting Lyrica for left arm pain and left hand numbness. At least my pain and numbness have not progressed, which is positive. If you can stop the progression of this disease, it's a plus .

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blahblahblah | 25-34 | Female | On medication for 1 to less than 2 years | Patient
10/28/2014
Condition: Other
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction

I had to take this every month for a year because I have dermatomyositis. It helped me so much and I could always tell when it was time to get another treatment. It did cause me severe headaches after every treatment and it was always a pain to find an iv site. I'm currently in remission so I have not had this in two months but I'm finally doing better where I don't need it anymore. I would recommend doing this for anyone who has dermatomyositis. I was falling and couldn't get up prior to taking this and now I'm so much better. Read More Read Less

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max37 | 75 or over | Male | On medication for 1 to 6 months | Patient
4/13/2014
Condition: Other
Overall rating 3.0
Effectiveness
Ease of Use
Satisfaction

I am a male in my 70's and have Multifocal Motor Neuropathy, I am getting immune globulin , Starting out with 5 days in a row, I now get a doble dose two times a month.I had 8 infusion so far. I can not walk or get up from a chair. my muscles are all gone. so weak i need a wheel chair. What will help me gain my muscles back ?

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Kacky1945 | 55-64 | Female | On medication for 1 to 6 months | Patient
6/9/2013
Condition: Other
Overall rating 3.3
Effectiveness
Ease of Use
Satisfaction

I received IVIG in Oct, Nov and Dec 08 for 2 consecutive days as an outpatient in a Boston Hosp for symptoms of Dermatomyositis. It helped my muscular weakness and balance problems significantly, but did little to help the skin problems of redness, heliotrope rash and intolerable itch , particularly of the scalp. A Dermatologist prescribed topical steroids to be used twice daily for 2 weeks, and then off for 1 week, and I have continued this program, with about 80% relief of the skin problems. I am most grateful for these IV and topical treatments which have improved the quality of my life greatly. I no longer fall down and have more strength in my arms and legs and can lift more weight than before Rx .My first Rheumatologist could not provide the IVIG regime (which I am continuing for 2 days on every third month), ie, on one month and off for two months. I got a second opinion and chose another Rheumatologist who arranged for the IVIG after MRIs and lab work and assessment. It has changed my life! I'm grateful that my insurance covers most of the cost. It is very expensive.Read More Read Less

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Anonymous | 55-64 | Male | On medication for 1 to 6 months | Patient
3/3/2013
Condition: Chronic Inflammatory Demyelinating Polyradiculoneuropathy
Overall rating 2.0
Effectiveness
Ease of Use
Satisfaction

Four treatments of 4 days of infusions over four months. Generally easy but headaches and fever if infused to rapidly. Skin reactions twice mainly in the chest area which responded to sterodial cream. No noticicable effect on CIDP.

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betty | 65-74 | Female | On medication for less than 1 month | Patient
1/30/2013
Condition: Guillain-Barre Syndrome
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

i have been treated at the pa hospital brisbane australia this drug has saved my life have nothing but praise for thier forsight to use this drug at the early signs of g b s

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LADY1949mg | 55-64 | Female | On medication for 6 months to less than 1 year | Patient
9/20/2012
Condition: Myasthenia Gravis
Overall rating 1.0
Effectiveness
Ease of Use
Satisfaction

I spent 2 days a month in a recliner for 7 hours each day and i did it for 6 months with no results at all. The night after the first IGIV i felt like i had the flu, i ran a fever and was lethargic. it took me 2 weeks to get over the sickies and then it was almost time to start all over...

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GaryS | 65-74 | Male | On medication for 1 to less than 2 years | Patient
2/12/2012
Condition: Other
Overall rating 1.7
Effectiveness
Ease of Use
Satisfaction

I was taking IGG-IV to prevent infections because of a depressed immune system (cancer for 20 years, including 8 yrs of chemo), but my neurologist and oncologist thought it might help with my peripheral neuropathy. It didn't. And finally I stopped it altogether because I was developing an adverse reaction to the treatment.

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Anonymous | 45-54 | Male | On medication for 1 to less than 2 years | Patient
12/29/2011
Condition: Prevention of Bacterial Infection in Chronic Lymphocytic Leukemia
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
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Anonymous | 35-44 | Female | On medication for 1 to 6 months | Patient
12/27/2011
Condition: Guillain-Barre Syndrome
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
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Wunder | 45-54 | Female | On medication for 2 to less than 5 years | Patient
11/22/2011
Condition: Hypogammaglobulinemia associated with Recurrent Bacterial Infections
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction

I was diagnosed with Hypogammagloblinanemina since then I started with form of brestmilk powder which i had a bad reaction to then after several bouts of phenomina we decided to go onto Igg Infusions now I have this every 4 weeks for the term of my life, I was being infused through the veins in my hands and now have a port in my chest above my heart up near my shoulder, I have problems at times with nurses not being able to access this properly and being stabbed several times is not so great, we have slowed up my anemia by having seen a gynocologist nothing removed but certainly sorted out as I was a heavy bleeder so this impacted heaps now I am ok blood pressure is great and I just suffer now from headaches like migranes for a few days after my infusions swellling of feet, scalp psorisis and is on other parts of my body. I have dizzyness and sometimes my my brain gets what you may say cloudy not being able to remember things clearly Im in my 50's and find this quite frustrating overall it has been great to have the Igg infusions as I was bed ridden and now i am free to do what I like allmost oh and sometimes suffer from constipation but I do take nexium and the Magneism helps me along all in all I am greatfull to be alive!Read More Read Less

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Stillfighten | 25-34 | Female | On medication for 6 months to less than 1 year | Patient
7/27/2011
Condition: Absence of Gamma Globulins in the Blood
Overall rating 3.3
Effectiveness
Ease of Use
Satisfaction

I have been on ivig now for roughly seven months. I went from looking like the walking dead to somewhat healthy. I wish i felt as good as I looked. I was sick for five years straight with everything in the book that normal people get and fight off in days. I would be sick for months. I hope my success w the drug continues. I do get severe side effects especially if they infuse too fast. I get dizzy, headaches, nausea, fatigue. I believe this drug saved my life. I have about one quarter of the infections now. Still way more than a healthy person but i hope it to get better.Read More Read Less

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Cathy | 45-54 | Female | On medication for 2 to less than 5 years | Patient
11/17/2010
Condition: Myasthenia Gravis
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

I have been receiving IVIG treatments for 2 yrs now. My first treatment was over 7 days, now I receive the same dosage in 3 days. To begin with I needed it every 2-3 months but have gradually gotten to every 6-8 months. The difference it makes in my strength and over all feeling of well being is tremendous. For me there has been no side affects.

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Anonymous | 45-54 | Male | On medication for less than 1 month | Patient
6/10/2010
Condition: Low Platelet Count and Bleeding from Immune Response
Overall rating 2.7
Effectiveness
Ease of Use
Satisfaction

developed every side effect by the 3rd infusion, will discontinue use

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Shellyhshell | 35-44 | Female | Patient
2/3/2010
Condition: Other
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

I have polymyositis. I started ivig about 5 years ago. In the begining I had treatments biweekly and currently I go every 3 weeks for 2 days. When I first started treatment I was barely able to walk, now I am much stronger. In the begining it have me huge headaches however now that the hospital changed from the powder form too liquid form the headaches are rare. Last year I thought ivig wasn't really helping but then I missed 2 treatments in a row and quickly went downhill to the point where it was very difficult to walk. I realized that the treatments were a great benifit. Getting a iv needle stuck in your arm every few weeks damages the vains and is Very painfull. If you are getting ivig on a regular basis I highly recomend getting a port. I wouldn't be as well of as I am today if ot wasn't for ivig. The treatments are ridiculously expensive, mine being over $20,000 a shot. Read More Read Less

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