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3.6 Overall Rating

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Ease of Use

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Most voted positive review

32 People found this comment helpful

Used mercaptopurine for 3 years. Best 3 years of the last awful 27 years I have had. However, I am now going through chemo for non hodgekins lymphoma, a side effect of mercaptopurine. Wish I had not taken the drug now.

Most voted negative review

3 People found this comment helpful

I am on this drug for a flareup that occurred this summer. However I will be requesting that my doctor take me off it, as the side effects are too serious for me to be comfortable with. We would also like to have children in the next few years. I would encourage anyone with IBD issues to research and seriously consider the Specific Carbohydrate Diet. I started it a few months ago and feel grea...

Shared reviews and ratings

Kentucky Mom | 35-44 | Female | On medication for 1 to 6 months | Patient
12/31/2008
Condition: Acute Promyelocytic Leukemia
Overall rating 3.0
Effectiveness
Ease of Use
Satisfaction

This medication has a side effect of severe knee and hip joint pain. During the mornings I can hardly walk. I have APL and am using this medication to slow down the growth of the cancer cells. I have to take a pain medication to help relieve the pain in my leg joints. I will be seeking advise as to other medication with few side effects.

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Anonymous | 13-18 | Male | On medication for 6 months to less than 1 year | Patient
12/21/2008
Condition: Other
Overall rating 3.0
Effectiveness
Ease of Use
Satisfaction

i took this med. along with a few other meds. i have just eliminated it because of severe knee pain... i still have the bad knee pain..i have ulcerative colitis, im 16 and have been hospitalized 5 times in 6 months..the colitis seems under control but the knee pain is extreme and prevents me from doing much of anything..my dr.s dont know why its this bad ....

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Al | 65-74 | Male | On medication for 2 to less than 5 years | Patient
11/23/2008
Condition: Other
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction

I have been using this medication for about 4 years and have no problems

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Anonymous |
11/21/2008
Condition: Inflammatory Bowel Disease
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction
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Anonymous | 65-74 | Female | On medication for 1 to 6 months | Patient
10/30/2008
Condition: Other
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction

I have been on every type of drug for Crohn's disease and have not been in remission for ine year I have been on this medicine for five weeks and I have been feeling pretty good, before I took this drug I couldn't leave the house I was going to the bathroom about 10times a day had was very week I went down to l06 pounds from 138 pds. and I couldn't eat nowI am eating and weight l09 pds. I also am on entocort and flaygl. I do have to take blood tests with this medicie I don't like the side effects but I had no choice but to take this medicine it was my last resort so far I am feeling pretty good.Read More Read Less

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Anonymous | 65-74 | Female | On medication for less than 1 month | Patient
10/12/2008
Condition: Other
Overall rating 2.3
Effectiveness
Ease of Use
Satisfaction

I have been on this for three weeks now and see no improvement yet. I have Crohns for four years have tried everthing after awhile nothing works for me.

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[email protected] | 25-34 | Female | On medication for 1 to 6 months | Patient
10/10/2008
Condition: Inflammatory Bowel Disease
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

I have had uc for ten years but just recently diagnosed.I was on prednisone for 2 months and hated it because my face blew up really really bad!!! I am now on 6mp and love it!!! I was very scared to take it. I researched it alot and decided to go for it. I am doing very good on it, no hair lose,which I was soooo afraid of. I am a little bit more tired but not bad at all. I've been on it for about six weeks and my colitis hasn't flared up at all. I feel alive again!!

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Anonymous | 55-64 | Female | On medication for 1 to 6 months | Patient
9/25/2008
Condition: Inflammatory Bowel Disease
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction

I've had crohn's sinse 1980 and sulfasal azine has worked for me all these years a;ong with the occasional use of a decreased dosage for flare-ups. Earlier this year I had a tough flare up and my doctor felt I should take 6Mp as well. I take 2 and 1/2 tablets a day. do not like to take so much medicine and hope that I can some day come off of it. however. I hade felt very good and credit the new med. for the improvement. also have blood tests to make sure vital signs remain normal.

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leigh2515 | 19-24 | Female | On medication for 2 to less than 5 years | Patient
9/22/2008
Condition: Inflammatory Bowel Disease
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

I was diagnosed with UC in 2003 (it went untreated for about 6 months). It was under control with Colazal and occasional prendisone usage. I had a big flare up during the end of 2006 and was taking prendisone for about a year (horrible, horrible side effects). I moved and got a new doctor and he put me on 6MP (and kept the Colazal) in late 2007. It has been pretty great. I have noticed that I don't heal as quickly as I used to and that I need more sleep to feel well rested. I have not had any noticeable hair loss and I don't seem to get sick (cold, flu, etc) anymore than I usually do per year. Read More Read Less

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KRoye | 35-44 | Female | Patient
9/13/2008
Condition: Other
Overall rating 3.0
Effectiveness
Ease of Use
Satisfaction

If my blood counts are ok I will begin the 6MP next week. I am excited but scared of some of the side effects. The loss of hair worries me but then I want to live without the pain and complications of UC. Does anybody have any sugestions or words of wisdom? Please, please help! -Scared but desperate!

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momma Ann | 55-64 | Female | On medication for 5 to less than 10 years | Patient
9/1/2008
Condition: Other
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

No side effects for me. I have Chron's and am controlling my diease

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UIalum | 19-24 | Female | On medication for 1 to 6 months | Patient
6/26/2008
Condition: Inflammatory Bowel Disease
Overall rating 3.3
Effectiveness
Ease of Use
Satisfaction

I was diagnosed with UC two years ago. I caught it early so I haven't had too many problems. I basically tried everything in the book for it - Asocol, Colzal, Prednisone, secial diets, etc. Some of them would calm the colitis but the side effects were far worse. Now I am on 6MP and the colitis has pretty much subsided. I am having the hair loss issues as well. I am getting married in 6 months and I am afraid that I will be bald and have to wear a wig. My doctor claims that this medicine doesn't cause people to lose their hair but after reading other people's messages, I know that it must. Thanks!Read More Read Less

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DW | 35-44 | Male | On medication for 1 to 6 months | Patient
6/9/2008
Condition: Other
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

I have UC. I have been sick for over 4 years with no solutions - asacol / prednizone ... nothing worked. Mercaptopurine has saved me - I have not been sick for weeks. I eat vegetables again / fiber again - I just cannot have dairy or peanuts (?). I have never felt more alive - and with no side effects. I have my life back to where I was before.

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Slick | 35-44 | Male | On medication for less than 1 month | Patient
6/4/2008
Condition: Inflammatory Bowel Disease
Overall rating 1.3
Effectiveness
Ease of Use
Satisfaction

Ive had mild UC since 1984. Flared up in March when I lost my mom. New GI doc proscribed this, and switched me to Lialda from Azulfidine EN, which I had been taking for 24 years. Ive been having muscle spasms in the neck, chest, back, and legs. Difficulty breathing. Waking up 4 times a night to take a hot shower to relieve the pain. I cant say if this is withdrawal from the Azulfidine or due to Mercaptopurine. My UC was never terrible before, but now I cant live/walk/sleep. I dont mean to scare anyone away from a potentially good drug, but this is nuts. Waiting on blood tests to see whats happening before he makes a change. I have been on this less than a week now. Note that past lapses in Azulfidine did cause joint pain and increased UC activity, but never anything like this....Read More Read Less

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Anonymous | 55-64 | Female | On medication for 6 months to less than 1 year | Patient
4/8/2008
Condition: Inflammatory Bowel Disease
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction

I have only been taking this med for about 9 Months. I have Crohns disease - active at this time. This is the first time I have taken this med. I'am still not crazy that I'am taking this - due to the side effects. I have had 5 surgery's for my crohns. My last surgery was 3 years ago and the one prior to that was 11 years. Therefore because it came back so fast the Doctor wanted me on this med. I don't like hearing that it can cause hair loss - not good.

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Anonymous | Female | On medication for 6 months to less than 1 year | Patient
3/27/2008
Condition: Inflammatory Bowel Disease
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction

After Asacol not working and a needed 6 weeks of Prednisone to relieve major inflammation, this drug has worked for me to reduce my severe Ulcerative Colitis. However, I have been on it for about 6 months and asked the DR when I can stop since I am in remission. He informed me "never" according to the Mayo Clinic Dr.'s. Apparently sometimes those that stop have the condition return and when put back on the meds, they no longer work. Now 1 month later my white blood cells are so low they are telling me to stop taking the medication. I am leary to do so as I don't want the Colitis to return but I am so weak right now I don't think I will have a choice. I am hoping my count will rise quickly so I can resume the medication.Read More Read Less

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Anonymous | 7-12 | Female | On medication for 1 to 6 months | Patient
3/26/2008
Condition: Other
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

This has been the best treatment for my Crohns a couple months after i started taking it started feeling amazingly better and it has got me in remission i have had no side effects and i would recommend this drug cause it has truly worked wonders for me.

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Ladyanne | 55-64 | Female | On medication for 1 to 6 months | Patient
3/22/2008
Condition: Inflammatory Bowel Disease
Overall rating 2.7
Effectiveness
Ease of Use
Satisfaction

I have fought UC for many years not knowing that I had it. Dx in 2004 following a scope. No flares until 2007. Am now on Asacol and 6MP with some minor improvement. I still cannot go to the office as the restroom is too far from my desk. Tried the steroids, which worked, however, side effects were not worth the results. Has anyone who is on 6mp suffered with hair loss? I used to have very thick hair and now I need to wear a wig after 30 days of being on the drug.

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Anonymous | 45-54 | On medication for 1 to less than 2 years | Patient
3/4/2008
Condition: Inflammatory Bowel Disease
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
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Anonymous | 19-24 | Female | On medication for 2 to less than 5 years | Patient
1/30/2008
Condition: Inflammatory Bowel Disease
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

I have had Crohns disease for approx 5 years now. I went through so many medications before finding a doctor who offered this one. Miracle Drug! I have had little to now flare ups since switching to this one and my condition has been stable. I hope they find a cure one day but until then- this drug makes me feel as normal as possible- I can function like normal again and not be keeled over in pain everyday of my life.

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