Recognize your feelings. It is natural for
parents to feel that they have done something to cause Klinefelter syndrome.
But this condition is a
genetic disorder and was beyond anyone's control.
Allow yourself time to deal with your feelings and talk with your son's doctor
about your concerns.
Educate yourself about the disorder. The
common problem for parents is fear of the unknown. Educating yourself will help
you learn how to help your son.
Support your son. Provide education
appropriate for his age about Klinefelter syndrome and give him the emotional
support and encouragement he needs. Remind him that most men who have
Klinefelter syndrome go through life with few problems.
involved in your son's care. Talk with your doctor about his treatment. If
counseling for behavioral problems is needed, or if your son has difficulty
reading or has poor verbal skills, get help from qualified professionals who
have experience working with boys who have Klinefelter
development (such as growth of the penis,
testicles, and facial hair) and muscle development are
very important to teenage boys. A boy who is not developing like other boys his
age may be afraid of being rejected and ridiculed by his peers. Early diagnosis
and treatment for Klinefelter syndrome may prevent some of this. Talk to your
doctor if your preteen or teenager is not developing like other boys his age,
is behind in school or having behavior problems, or has unusually long legs
compared with other family members. See a picture of a
male with Klinefelter syndrome.
WebMD Medical Reference from Healthwise
February 13, 2009
This information is not intended to replace the advice of a doctor.
Healthwise disclaims any liability for the decisions you make based on this